My boyfriend’s son is playing a Mario game on the Wii. I’m sitting in the other room listening. He keeps telling the bad guys on the game, “Come on. You can get me! I’m Mario!” Then as he kills them or runs past he says, “Oops. Guess not.” Taunting villains on a video game is definitely cute.
My computer got a virus today. :( It is okay though. My extremely sexy yet geeky boyfriend did something amazingly nerdy and fixed it! I love him so much. Especially that giant brain of his. I would have been lost without him!
A new year is dawning, and I really hope that it is going to be a good one. The last one had so much good in it, but so much bad in it. I think we’ll have to call it a tie over all. Last year was the first year with my diagnosis. Very difficult. I had some trying times with self and a few other people. I contemplated suicide for the first time in a long time. I also had to take on a...
I had a dream last night that I got bit by a rattlesnake like four times on my left arm. I remember being really calm about it, but I knew that we had to get to the hospital right away. In my dream my boyfriend was going to drive me, but he wanted his son to put on his shoes, coat etc. before we left. I don’t know if you have been around kids, but it takes a 7 year old a long time to put...
Another trying day at work. I didn’t freak out and no one died so I think we can call that a success!?! Kind of hoping that my overseer is gone tomorrow as well so I can have more practice running the place! It feels nice.
I painted my finger nails for the fist time in probably ten years! I feel like I’m in High School. Interesting side effect! By the way they are green!!!
Acting My Age
I have met a few people who have surprised me with how young they are, yet how serious they act. I often wonder if I act my age. I know that this probably doesn’t matter in the end. I have a boyfriend, a job, and friends. Changing my behavior is obviously not necessary to receive the things I want in life. It still makes me stop and take stock of what I have and have not done when I...
My grandmother has always been extremely important to me. We seem to have a lot of things in common as far as interests and personality. I always secretly hope that a part of what makes her such an amazing person was downloaded into me through our shared DNA. She is an amazing person because she has always lived the life she wants to live, and hasn’t really cared that some of the...
I just started watching Doctor Who. I am only at the beginning of the second season. I feel like losing the original doctor from season one was a bad thing. Maybe I will be surprised and like the new doctor, but so far I am missing the old doctor.
I get bored with my look all the time. I think it is time for something new. Last time I dyed my hair a new color! Not sure what I am doing exactly, but I’m looking for something new. I’ll post before and after photos when I have decided what to do!
Bucket List Continued!!!
I want to see a play on Broadway. (Not just a Broadway play, but on actual Broadway!)
Must Be Doing Better
It is official. I must be doing better. For the longest time after my diagnosis when I would get stressed out, I would have a break down and freak out. I think the problem was that I only have so much energy to put towards functioning normally, and any other stress pushed me over the edge. Today I was way stressed out at work. I was alone in a newish position and things were going wrong! The...
Tough as Nails
I was joking with two of my co-workers today. One of them said that she was going to be mean to me. So mean I would cry. My other co-worker said, “Right! Her? She is tough as nails.” It made me smile, and I thought it was worth sharing. It makes me feel good to know that I am stronger than I feel sometimes.
Getting ready to go out and exchange some gifts with friends at the bar! It is going to be a lot of fun. I’ll post up some pictures of our awesome so you won’t miss out!
I have done almost nothing all weekend. It feels nice. I have managed to watch over half a season of Supernatural. In fact, if I go back to it now, I may be able to finish it before bed tonight. :)
I was laying in the bathtub tonight thinking about all the new scars I have acquired in the last two years. Most of them I remember, some I don’t. I do know that there are more these last few years. They seem to have become very common. It makes me wonder if it is because I am getting old and not healing as well, or if I am getting slower and/or more clumsy. I fear anything that feels...
What is the plural form or Christmas? Christmases? That looks so funny.
I had a great time putting up decorations with my boyfriend. Our tree is obnoxiously white, but I love it. Christmas has been great these last few years. They are some of the best I have had in a long time. Thank you to my wonderful boyfriend and his son. They make my life better in so many ways.
Not a big fan of Christmas, but I am ready to give it another good try this year. We are going to decorate tomorrow. I’ll post what the awesome looks like when we are done.
I really loved the TV show House. Then as the seasons progressed there was a character that was in my situation. She didn’t know whether or not she was going to come down with Huntington’s. It made me mildly uncomfortable to see what I might look like from the outside. Then I got over it. As time passed the character on House did find out she was going to contract HD. I also...
I had made the choice to quit drinking alcohol in light of my Huntington’s. Research states that people with HD are more likely to abuse alcohol. It made sense. However, being 25 and living in a college town it is difficult to not drink. I am also not symptomatic as of yet. Therefore, I have concluded that mild drinking is allowed until further notice. I am giving myself some leash and...
Got in a small argument with my boyfriend today, and some how it blew up into me venting about my illness. It was bad. I yelled and cried. I pushed him really hard, and then was scared that I would push too much and he would break. In the end he was strong, and he stayed. We are okay now. I just worry when I have these episodes that he is going to get sick of me acting crazy and take off. He...
Inappropriate Jokes cont.
My boyfriend: If you got bit by a zombie after you start having Chorea, would you still have it as a zombie? Have to admit that is a funny thing to imagine. I love him so much. I’m glad he makes me laugh.
I went and intentionally looked for other blogs that talk about Huntington’s Disease. I was hoping that I could find other people that are dealing with what I am dealing with, or that are progressed further than I am that I can learn from. I also hope to find people who are maybe afraid to get tested, so that we can learn from each other. I hope that this goes well. I am excited.
Inappropriate Jokes cont.
Joke #3: I can’t wait till I start having dementia. Then when I am in a store with my boyfriend I can call all those people assholes. Then when they call me on it my boyfriend can be all, “Oh she is sick. She doesn’t know what she is saying. It isn’t her fault.” Then we can laugh amongst ourselves. It is going to be awesome.
I have been defunkified. I feel so much better. I have energy today, and actually want to do things. I went to the store finally! I also got up and started cleaning house. My house is so much cleaner that it makes me feel good too. I have the want to listen to music and dance around like the weirdo you all know I am. I also want to get back to scrap booking I have some catching up to do. I...
Talked to my dad on the phone today. He asked if I was coming home for our birthday, yes we are born on the same day. The conversation proceeded as follows: Dad: You coming home for our birthday? Me: I’m staying here and planning a party. You should come, but you’d have to dress up. Dad: Dress up how? Me: We are having a super villain, superhero party. You have to come up with a...
He Makes Me Happy
My boyfriend is such a great person. He started off being amazing by staying with me in light of my disease, but he continues to amaze me. He is very caring, and loving. I appreciate every moment we spend together, unless we are arguing of course. :) I care about him in ways I haven’t cared for other men I have dated. I am also surprised that he cares about me as much as he does. He...
I decided this is my anthem for the week. This is called “Let’s Rock” it is by Smash Mouth. Let’s Rock: Lately I’ve been thinkin’ about the past About the good times And have they all coming gone And are there more years behind than ahead Then I say to myself Fuck it let’s rock Lately I’ve been thinking about who’s in charge About...
I haven’t been getting out enough lately or something. I am in a horrible funk. Everything seems to make me irritated or on the verge of crying. Neither state I’m a big fan of. I also feel exhausted a lot of the time, even when I’m getting enough sleep. I feel kind of hollow and numb. I really just want a warm sunny day to soak in some heat, but those days are behind us now...
Had another bad day today. Everyone either irritated me or made me want to cry. I really think this started last night, and just continued on into today. Really though I wanted to kill everyone. I don’t understand what makes me so emotional all the time. I am taking a firm stance on it is not: cramps, pms, or because I am a woman. I am sure it is something that has nothing to do with my...
When I started righting this blog I tried to keep it specific to my Huntington’s Disease. It was a place to reach out and work out my feelings. Recently however, I have realized that part of working through my issues and sharing how it affects me is going to involve sharing more of my life. For example, yesterday I decided that the puppet, named Super Bee, that my boyfriends son brought...
Inappropriate Jokes cont.
Inappropriate Joke #2: I’m throwing a superhero/super villain party for my birthday this year. We have to make up our own they can’t already exist anywhere. I could go as the spasm! No, wait, that already exists on Mythbusters. My boyfriend’s response: You can go as Captain Chorea! (Chorea is the name of the uncontrollable muscle movements that are associated with my...
el-sergio asked: How come there isn't a picture of you and your awesome boyfriend at your EXTRAVAGANZA! ??
I think that the cold weather and the snow are making me extra cranky. It makes me cranky for no other reason then it can. I don’t like it. I know I am being short with my family, but I don’t know why, and therefore do not know how to stop. It makes me more upset which makes me more cranky. When I have bad HD days it is acceptable because it is understandable, but there...
How do you live?
I had a coworker ask me an interesting question today. She asked me how I live knowing around when I will die. I told her that I live well, or try to. I try to do the things that would be put off for later now. I try to live in the now, and experience as many wonderful things as I possibly can in the time I have. I’d also like to say that though I say I have till 50, I am not positive...
Just got back from my party! It was such a blast. I had great friends show up. One of my friends bought me a silly hat and party favors for everyone. We had a great time eating food and playing pool and darts! I even won a game! Some of the highlights of the night included my boyfriend winning all but one game of pool, and then winning 50 bucks on a quarter pull tab! I also got to silly...