June 2012
17 posts
Super Happy Day
I’ve had a super happy day! I don’t know why, but I woke up in a great mood! I have managed to stay in a good mood all day. I just got home from work, and I can’t stop the big smile on my face. I am going to walk to the store and buy some Ice Tea just so I have an excuse to get out into the sunshine with the dog. Think I’ll make my boyfriend’s son come with me,...
butyouwould asked: your ability to inspire is without constraints. you deserve nothing less than the utmost of admiration from everyone, though i can only speak for myself. as such, you have my deepest respect. please don't mistake my message for sympathy, as i have none -- i feel it's without presumption that i may say you're one of the strongest women i've never met and i suspect sympathy...
2 tags
Neurologist Check
My neurology appointment was today. I had to miss work to have my boyfriend drive me up. We were nervous that the doctor would run some tests and tell us that I am further along in the progression than we thought. I was also nervous because this is the first doctor’s appointment about my Huntington’s that I had to go to by myself. My boyfriend drove me, but he had to stay in the...
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Getting Close Now
Just a few more days until my neurology appointment. I don’t know what I am so worried about. It isn’t like I’m going to see Frankenstein, and he is going to make me into a monster. I doubt they will even run any sort of test on a first visit. Probably ask me the standard battery of questions and send me home.
I can answer those questions…I hope. :)
1 tag
The Not Wedding Ring
I want to get married again someday. I want a second chance at what I failed at the first time. My boyfriend does not want to get married again.
I came down the stairs yesterday, and saw a small envelope on a shelf. The envelope read Harry Richies, and there was a recite under it that said $199.00. Let me make it clear that I saw them in passing, and got no more information than this.
There was...
1 tag
Doctor Results
I finally went to the doctor and got a copy of my test results. It is nice to have them, and I needed them anyway. I am going to apply for FMLA at work so I can go to the neurologist as often as I need to.
At the same time, having my results is sort of sad. I don’t want to look at my number. I don’t like it.
I talked to my doctor’s secretary for awhile. She is really nice, and...
2 tags
Father's Day!
Just finishing up our Father’s Day celebrating! We got my boyfriend Cake, the Second Season of Psych, and the three Bourne Movies. We also got him Zombie Munchkins!!! We are currently trying to teach our eight year old how to play. He gets how to kick down the door, and loot the room, but he is having a bit of trouble knowing what to do with all the cards in his hand. It may be a bit over...
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So, it has been over two weeks on my new pills. I don’t feel really different, only that I don’t feel as much emotion as I was feeling. My boyfriend says I am feeling emotion how I am supposed to. I don’t know. I do know that we are fighting less, and that I don’t get as upset at him all the time. That is really all that matters. It wouldn’t matter if they made me...
1 tag
A Week In
I’ve been on my pills for a week now. I moved up to full doses as of yesterday. Overall most of the side effects have subsided, except for not too long after I have taken them.
Overall I think I have been more happy these last few days, but I also think that I have been trying harder because I don’t want to be broken. My boyfriend says there has been an obvious change, but he...
1 tag
Neurologist
I set up an appointment with a neurologist for the 28th of June. It is a bit from the house to the doctor, so I have to take the day off of work, but at least I am going.
I am going to make my boyfriend go with me. I am nervous, and don’t really know what to expect. My sister offered to give me the information about the neurologist that worked with our mother, but that seems odd. I...
Weird Dream
I had a dream last night that the doctors put me on Medical Marijuana, and my boyfriend was explaining to his son that even though it was medication that taking the wrong drug for the right reason was still bad.
I don’t even know what to say! I wouldn’t use Medical Marijuana to start with, but he was so un-supportive.
Bed References!
Why do singers like to make bad references?
Examples:
1. “We’ll kick him to the curb unless he looks like Mick Jagger.” Kei$ha
Mick Jagger…not cute.
2. “I’ve got moves like Jagger.” Maroon 5
Mick Jagger also looks like a weirdo while dancing.
3. “I’ll play Bobby and you play Whitney” Black Eyed Peas
Yes you can play my...
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New Research Shows Promise →
This is an article about new research into a potential cure for Huntington’s Disease.
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This is a very informative pamphlet on... →
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Doctor part 2
I had my appointment with a Nurse Practitioner. She didn’t really know what to do with my Huntington’s, and had terrible bed side manner. Other than that we are moving in a forwardly direction. She gave me the number of a local neurologist, and I am going to call and make an appointment soon (Have to get some paperwork first; Not stalling).
She also put me on a anti-depressant...
1 tag
Job
So, I did not get the new job I was hoping for.
It is okay. I am happy with the people I work with now. I would have missed them terribly.
Also, I have officially blamed my religious friend for dropping the ball on this one. I don’t think he prayed hard enough. It is okay, don’t be upset. I have informed him of his fault, and he said he will do better in the future.
The above...
May 2012
32 posts
1 tag
Afraid to Tell People
For the longest time after receiving my positive test results I was afraid to tell people about it. At first I wasn’t sure why, and then I sort of got over it. This morning, I was thinking about it, and I think I pinpointed the reason.
When I was in Jr. High we did a unit in science on gene mutation. One of the diseases it mentioned was Huntington’s. When the teacher read off that one...
The World Spins Madly On
So my boyfriend and I have been having a harder time than usual as of late, but we are both working really hard to pull up out of the problems we are having. I heard this song on my Itunes, and it reminded me of my boyfriend. This is the first song he ever sang to me while playing guitar. Made me remember all the good things we have done, and all the good times we have had. I wanted to share it...
WatchThis is my cat Kira. She decided to steal a strip of my scrap booking paper while I was working today.
